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Category: DISABILITIES (Page 2 of 2)

Disabilities could mean physical, mental or both.

List of Mental Disabilities (A-Z) as Follows:

A

Absence seizure
Aboulia
Acute stress disorder
Adjustment disorder
Agoraphobia
Alcohol abuse
Alcohol addiction
Alcohol dependence
Alcohol withdrawal
Alcoholic hallucinosis
Alice in Wonderland syndrome
Alzheimer’s disease
Amnestic disorder (Amnesia)
Amphetamine dependence
Anosognosia
Anorexia nervosa
Anterograde amnesia
Antisocial behavior
Antisocial personality disorder
Anxiety disorder
Asperger syndrome
Attention deficit hyperactivity disorder
Attenuated psychosis syndrome
Autism spectrum disorder
Autophagia
Avoidant personality disorder
Avoidant/restrictive food intake disorder
Atypical depression

B

Bibliomania
Binge eating disorder
Bipolar disorder
Body dysmorphic disorder
Borderline intellectual functioning
Borderline personality disorder
Breathing-related sleep disorder
Brief psychotic disorder
Bulimia nervosa

C

Caffeine-induced anxiety disorder
Caffeine-induced sleep disorder
Caffeine dependence
Caffeine withdrawal
Cannabis dependence
Capgras delusion
Catalepsy (Narcolepsy)
Catatonia
Catatonic schizophrenia
Childhood amnesia
Childhood disintegrative disorder
Childhood onset fluency disorder
Child neglect
Circadian rhythm sleep disorder
Claustrophobia
Cocaine dependence
Cocaine intoxication
Cognitive disorder
Communication disorder
Conduct disorder
Conversion disorder
Cotard delusion
Cyclothymic disorder

D

Delirium
Delusional disorder
Delusional parasitosis (Ekbom’s syndrome)
Dementia
Dependent personality disorder
Depersonalization disorder
Depression (mood)
Depressive personality disorder
Dermotillomania
Developmental coordination disorder
Diogenes syndrome
Disinhibited social engagement disorder
Disorder of written expression
Dispareunia
Disruptive mood dysregulation disorder
Dissociative amnesia (Psychogenic amnesia)
Dissociative identity disorder
Down syndrome
Drug withdrawal
Dyscalculia
Dyslexia

E

Encopresis
Enuresis
Erectile disorder
Erotomania
Excoriation disorder
Exhibitionistic disorder
Expressive language disorder

F

Factitious disorder
Female sexual arousal/interest disorder
Folie à deux (Shared psychotic disorder)
Fregoli delusion
Frotteuristic Disorder
Fugue state

G

Gambling disorder
Ganser syndrome
General adaptation syndrome
Generalized anxiety disorder
Grandiose delusions

H

Hallucinogen persisting perception disorder
Haltlose personality disorder
Histrionic personality disorder
Hoarding disorder
Huntington’s disease
Hyperkinetic syndrome
Hypersomnia
Hypoactive sexual desire disorder
Hypochondriasis
Hypomanic episode
Hysteria

I

Illness anxiety disorder (Hypochondriasis)
Impostor syndrome
Impulse control disorder
Inhalant use disorder
Insomnia
Intellectual development disorder
Intermittent explosive disorder
Internet gaming disorder

K

Kleptomania
Korsakoff’s syndrome

L

Lacunar amnesia
Language disorder
Learning disorder

M

Major depressive disorder
Major depressive episode
Maladaptive daydreaming
Male erectile disorder
Malingering
Mania
Melancholia
Minor depressive disorder
Misophonia
Mood disorder
Morbid jealousy
Munchausen syndrome
Munchausen by proxy
Mixed episode

N

Narcissistic personality disorder
Narcolepsy
Neurodevelopmental disorder
Neuroleptic-related disorder
Nicotine dependence
Nicotine withdrawal
Night eating syndrome
Nightmare disorder
Non-suicidal self-injury

O

Obsessive-compulsive disorder
Obsessive-compulsive personality disorder
Obsessive love disorder
Oneirophrenia
Onychophagia
Opioid dependence
Opioid use disorder
Oppositional defiant disorder
Orthorexia nervosa
Other specified feeding or eating disorder

P

Pain disorder
Panic disorder
Paranoid personality disorder
Parasomnia
Parkinson’s disease
Partialism
Passive-aggressive personality disorder
Pathological gambling
Pedophilic disorder
Perfectionism
Persecutory delusion
Persistent complex bereavement disorder (Complicated grief disorder)
Persistent depressive disorder (Dysthymia)
Personality disorder
Pervasive developmental disorder
Pervasive developmental disorder not otherwise specified
Phencyclidine-related disorder
Phobic disorder (Phobia)
Phonological disorder (Speech disorder)
Physical abuse
Pica (disorder)
Polysubstance-related disorder
Postpartum depression
Posttraumatic embitterment disorder
Posttraumatic stress disorder
Premature ejaculation
Premenstrual dysphoric disorder
Primary hypersomnia
Provisional tic disorder
Pseudologia fantastica (Pathological lying)
Psychogenic amnesia
Psychoneurotic personality disorder
Psychotic disorder (Psychosis)
Pyromania

R

Reactive attachment disorder
Reading disorder
Recurrent brief depression
Relational disorder
REM sleep behavior disorder
Residual schizophrenia
Restless legs syndrome
Retrograde amnesia
Retts disorder
Rumination syndrome

S

Sadistic personality disorder
Schizoaffective disorder
Schizoid personality disorder
Schizophrenia
Schizophreniform disorder
Schizotypal personality disorder
Seasonal affective disorder
Sedative-, hypnotic-, or anxiolytic-related disorder
Selective mutism
Self-defeating personality disorder
Separation anxiety disorder
Shared psychotic disorder
Sleep disorder
Sleep terror disorder
Sleep paralysis
Sleepwalking disorder
Social anxiety disorder (Social phobia)
Sociopathy
Somatic symptom disorder
Somatization disorder
Stendhal syndrome
Stereotypic movement disorder
Stockholm syndrome
Substance-related disorder

T

Tardive dyskinesia
Tourette syndrome
Transient global amnesia
Transvestic disorder
Trichotillomania
Truman syndrome

U

Undifferentiated somatoform disorder (Somatic symptom disorder)

V

Vaginismus
Voyeuristic disorder

NHS Complaint – Well Roath Pharmacy City Road Cardiff

Meddygfa Albany Surgery & Well Roath Pharmacy City Road

Due to the coronavirus people who are vulnerable are given the option to have their medication delivered to their property as in the case of my daughter.

So last week I arranged for the medication to be delivered to my property but forgot that my daughter had a hospital appointment and because I cannot get up and down the stairs I would have relied on her to open the door to get the medication from the courier.

The pharmacy was reluctant to do a delivery and the pharmacist I spoke to said is there anyone that can collect the medication on behalf of my daughter i.e a neighbour or friend.

So again the pharmacy have contradicted themselves they asked if we knew anyone that could pick up the medication, but would not leave the medication with a secure neighbour inside my house.

Now you have to imagine the scenario I live in a terrace house, I live upstairs with my daughter, whilst there is a young family down stairs who are my tennants so I trust them implicitly, furthermore my door bell is a video cam so I can record who is at my door should I wish to do so ( however in this instance I did not and in a way I am gutted as I could have uploaded it but mores the pity I did not record it, lesson learnt I suppose for future).

Now pre covid-19 you as a patient can nominate anyone to pick up your prescription from over the counter if you are unable to do so yourself.

Here is my rant the courier came whilst my daughter was out, so I could not go down the stairs but I heard my tennant open the door. the courier did not want to leave the medication with my tennant and proceeded then to intercom me where I said to him I could not go down the stairs and for him to leave it with my tennant.

He refused point blank and said he would get sacked and I said “who would report him to get sacked” ceratainly not me seeing as I would be grateful that he had empathy and had done my daughter a favour and saved her from exposing her to an unsafe and dangerous environment.

So if my daughter God Forbid contracts this disease I can then sue the Pharmacy and the Courier and the NHS, I would go after everyone individually and I was once told by a solicitor that I could have been one 🙂

He went onto say he could not leave the medication with anyone other than the name on the parcel. I said but the medication is for my daughter and not for me, so my name is not on the parcel. He then said but he could leave it with me, so he contradicted himself as my name was not on the parcel.

I called him an “a@@eh@@e” and he doubled back and said what did you say?, being confrontational in which I turned off the intercom and cut him off.

Now my daughter has to go to the pharmacy to risk her own life to collect the medication that this idiot could have left with my tennant, who could have been the nominated person to collect the prescription over the counter pre-covid time and I could have recorded the delivery on my ‘Bell Cam’, but the courier did not give me a chance to do that.

I understand the point that you cannot hand over the medication to just anyone, but this was my tennant and I could have recorded the whole thing as an added precaution and security measure.

I am now going to name and shame this courier and pharmacy and the GP Surgery:

https://finder.well.co.uk/store/roath-city-road

I do not give a damn about this GP and Pharamacy and they have been on my radar for a long time now, with the doctor mis-diagnosing my daughter and giving her Gaviscon for a Auto-Immune Disease.

Not only this, when I first contacted the named pharmacy they refused to do the delivery and said they will do it just this once out of charity and tried to get us to ask a neighbour or friend to come and collect it instead…(no security issue there so it seems).

Yet you expect to clap for them every Thursday, they know what they are doing when they sign up for a job, you would not see soldiers crying because they are on the front line the same goes for the NHS they know what they signed up for when they chose the job.

For the pharmacy making that statement and being reluctant to do the delivery, my daughter already reported them to the council once already, she aims to do it again if this medication is not delivered.

One knows the risks prior for doing the job, so do not moan about the job and do your job properly.

Yes the doctors and nurse do a grand job don’t get me wrong but you would not pay off a heart surgeons mortgage if you had a heart attack and he saved your life. The same goes for the MOD (Ministry of Defence), but we do not stand on the doorstep clapping our hands for them, do we !

So to top it all my daughter went to collect the medication from the pharmacy after being told by the courier it would be back at the pharamcy today. Only to be told by the pharmacy the courier had not come back. So my daughter is now going to have to go again a second time.

15.52 The saga continues. I phoned the pharmacy and asked to see how we could resolve the ongoing problem and they said they attempted to deliver once so they have done their job…….

I reiterrated that my daughter is vulnerable and she cannot go again to the pharmacy, so they replied they will ask their one and only driver to deliver it again but could not make and guarantees. The pharmacy have no care for the patients well being.

I put the question to them if I was to send my tennant to the pharmacy what would be the difference of leaving the medication with the same tennant that lived in my house? The pharmasist could not answer me other than saying delivery drivers have to leave the medication with the patient. So if I was able to get downstairs this morning and I am not the patient the delivery driver should not have been able to give the medication to me, yet he said he was going to leave it with me even though I was not the named patient on the package.

Watch how they will try and justify their shambles of an excuse of a rule that makes no sense at all, that can be broken depending if the person used their intiative and used more than one brain cell. If I was the courier I would have asked the tennant to sign for the medication, its not hard and would have covered his sorry a@@e!

So the appointed person can collect the medication but the delivery driver cannot leave it with the appointed person even though the delivery would be video recorded….. work that one out?

My daughter also observed how the pharmacist was walking at a super slow pace even though there was a queue of people waiting in a line on the foot path in the scorching sun to be served. My daughter said the pharmacist was slower than a sloth

and was asking a patient to re-spell multiple times.

By coincidence I assume it was the same person that asked me three times today to spell the name of my daughter, which only has four characters in the name.

If I was the manager of that pharmacy I would have a stop watch on my staff member and retrain my staff.

This is unbelievable and a total shambles.

If the one and only driver fails to deliver, then tomorrow they will feel my wrath and will be showing them this post.

17.57 Update the Driver Failed to Deliver, why does that not suprise me….

Update Tuesday 26th May 2020

The same digruntled courier did deliver the medication and these are my daughters words not mine, “his body language and tone in his voice gave the impression he does not like his job”.

***Do not use this GP or Pharmacy they are a waste of space.

Disability Discrimination.

Disability Discrimination.

Disability Discrimination on my mind. According to the website: https://www.citizensadvice.org.uk/law-and-courts/discrimination/discrimination-because-of-disability/what-counts-as-disability-discrimination/

Here is the overview of what Disability Discrimination means:

What counts as disability discrimination

This advice applies to England

Table of contents

What is disability discrimination

It is against the law to discriminate against disabled people in various areas of their lives.

If disability discrimination takes place in any of the following situations, you may be able to take action about it:

There are some important areas where it is not against the law to discriminate against disabled people, for example, in access to public transport services.

Disability discrimination can either be direct or indirect.

Direct discrimination is where you are treated less favourably because of your disability than someone without a disability would be treated in the same circumstances.

But what it fails to address is people with disabilities in their homes where they are subjected to have certain things done because the landlords are obliged by the councils to have certain things done which may hinder a persons life.

So where the law says that all public places and landlords have to abide certain rules not to discriminate disabled people, it in fact contradicts itself by forcing the landord to do certain things that may be in fact obstacles for disabled people.

Here is an expample a mental health patient cannot touch door handles and locks due to their OCD but the law states you have to have these locks in case of a fire. The scenario being that a front door normally just has a yale lock but now it has to have a handle and a lock that you can open from the inside but you need a key from the outside. So instead of a normal yale lock you have to a key and door handle that you push down to open the door plus your yale lock. This in turn causes distress with the mental health patients. Another scenario someone who is claustophobic may not want doors yet the law states you have to have fire doors. So the law is not well thought through as the person who has mental health issues has to do as the law says which is a contradiction in terms. Furthermore back to the person who has OCD or Social Anxiety why should they be subjected to workmen disturbing their way of living. I refer to a website where one person actually mentions these scenario’s on their website: www.ocd.cymru

You won’t find anything like this what I write on the internet as the powers that be will never mention it and will try to supress anyone that does.

Lemtrada (alemtuzumab) Sanofi Genzyme Deaths

A pharmaceutical company in the USA is selling a drug that costs $158,000 per treatment per person and was approved by the FDA although it states on the FDA website the drug can cause fatalities. (FDA PDF Below). It has been used in the UK since 2016.

Lemtrada (alemtuzumab) Sanofi Genzyme

Lemtrada Targets MS-related Cells

Lemtrada, which is also known as alemtuzumab, was originally approved by the U.S. Food and Drug Administration, under the brand name Campath, to treat B-cell chronic lymphocytic leukemia. The drug is a humanized monoclonal antibody that seeks out and destroys specific immune cells that carry a protein called CD52. Many of these cells are believed to be the white blood cells that attack the central nervous system in people with MS.  When those cells are destroyed, the body manufactures new white blood cells that have different properties, i.e., beneficial helper cells rather than the destructive cells that are programmed to attack myelin. Thus, the similarity to stem cell replacement therapy. That therapy uses chemotherapy to destroy most of the body’s immune system cells. Then, fresh stem cells are infused into the body which, over time, create new white blood cells. Unlike other disease-modifying therapies (DMTs), which require injections every few days or monthly infusions, patients receiving Lemtrada are treated once a year, for two years.  In the first year, the drug is infused daily for five days in a row, on an outpatient basis. Each infusion takes about four hours and the patient is watched for another two hours afterward.  A year later that process is repeated, but for only three days.  And that’s it.

Neurologist Power of Persuasion.

A new database reveals that individual medics are receiving tens of thousands of pounds in consultancy fees from the pharmaceutical industry while recommending products to patients.

Some NHS officials involved in assessing which drugs should be prescribed to patients, such as the neurologist have been earning up to £20,000 per patient from directly marketing their products to the health service. However, tens of millions of pounds worth of payments have been paid to doctors and officials and were not individually declared because the recipients refused to be named (I wonder why?). This proves what I originally suspected that even though the Neurologist mentioned some risks he said in his time prescribing the drug he never heard of any fatalities. In other words money talks…..

Citation: https://www.telegraph.co.uk/news/2016/06/30/individual-nhs-doctors-receiving-100000-per-year-from-drugs-firm/

Screenshot European Medicine Agency
https://www.ema.europa.eu/en/search/search?search_api_views_fulltext=lemtrad
Cost of Treatment For the NHS.
FDA-PDF

However earlier this year the European Medicine Agency restricted the use of the drug to “new patients” in the UK and stated that the drug can cause serious life-threatening illnesses the drug is under investigation in which all investigations will be completed by October of this year. What the European Medicine Agency failed to say is that there have been numerous fatalities.

Patients already on the treatment are asked to continue with the treatment and if they have any concerns they need to speak with their doctor.

Now here is the scenario the NHS has bought this drug and they would obviously want their money back if the drug is deemed to be unsafe, but that is never going to happen as the government would be out of pocket. According to the (EMA) European Medicine Agency patients who benefit from the drug can use it. In other words “we will see what happens”…

Am I missing something here if a drug is unsafe to use do not allow patients to continue using it. From citations from https://multiplesclerosisnewstoday.com/news-posts/2019/08/26/link-between-lemtrada-and-mortality-more-common-than-previously-reported-study-finds/ Nine fatality cases were deemed probably caused by Lemtrada, with six of these patients dying within one month after receiving just one treatment infusion, https://bmcresnotes.biomedcentral.com/articles/10.1186/s13104-019-4507-6, In my opinion, one fatality is one too many…….

So here is the other scenario I know about this drug my 18-year-old daughter was about to start her second treatment this year in August, precisely one year after her first treatment.

I was told by the ‘European Medicine Agency’ if they suspect the drug is unsafe to restrict it to all patients but I can see the red tape and they have come back to me saying that I should talk to my daughter’s doctor. I explained if a manufacturer of a car, for example, had a fault, the cars would be recalled and the manufacturer would not risk a lawsuit, but the ‘EMA and the Drug Company Sanofi & the NHS think they can go unchallenged if something was to go wrong. EMA responded that all drugs including Ibuprofen and Asprin have an element of risk. But none actually state anything about fatalities. I was told by the EMA if there was a drug that could prolong your life for another ten years if I had cancer, knowing after the ten years I may get another form of cancer would I take it? Obviously, I am not speaking for everyone but I would look for alternative medicine and look into stem cell technology, I would not take something that was dangerous and could cause fatalities.

I wrote to the FDA and they did not reply but the pharmaceutical company did and so did the ‘EMA’. I said to both organizations you cannot use people like ‘lab rats’ without their knowledge and they both did not comment on this and said if I had any concerns I should speak with the consultant/neurologist, so I hit a brick wall with my questions.

The hospital also has not said to my daughter the drug has been restricted. When I challenged the sister on duty at the time of my daughter’s second infusion, the sister said the drug had been restricted because it was too expensive for the NHS (she blatantly lied to me), I then asked a nurse and she said she did not know it was restricted.

So this tells me the staff in the hospitals have been pre-warned that if anyone was to ask is to just act dumb, after all they would not want a moral panic. (A moral panic meaning – A moral panic is a feeling of fear spread among many people that some evil threatens the well-being of society).

The drug can cause, thyroid, liver, kidney disease, cancer, or death.

Moving on my daughter for the next five years religiously has to have her blood and urine tested each month. What is the NHS going to do if she contracts another illness because of the drug…….no doubt put a plaster on it and come up with some lame excuse. She is also assigned a Nurse from the MS Team and for any concerns she has to ring the helpline.

So last Friday my daughter phones the MS team on 11/10/19 as she knows for a fact her immune system has been shut down from the drug to ask if she is ok to be amongst people who may have scarlet fever. She happens to be in college studying her ‘Health & Social Course’ and one of her classmates has ‘Scarlet Fever.

When she was connected to an operator she was told they are not qualified to give advice and that she has to phone another number, which again she ended up out of frustration after the 4th attempt to contact the Neurologist’s Secretary who told her to go back and phone the MS Team. So we were four days into my daughter phoning for advice and no one from the MS Team, my daughter phoned Friday 11th October 2019 and no one has bothered to phone her back.

My daughter then said she experienced a sharp shooting pain across her chest and down her left arm over the weekend and thought she was relapsing. My thoughts were she was having a side effect from the drug and having pains across her chest and down her left arm is not a good sign, especially at the tender age of 18 is very concerning.

I did try and contact the media over this in July of this year and the well know national newspaper journalist said how come it has not been in the news?, well unless someone does a hoo-ha and starts behaving like a raving looney banshee, no one is going to take any notice, so that is why I have started putting the wheels in motion. The media are not going to publish something that can cause a major uproar throughout society. People will lose faith in the healthcare system and people will look for alternative medicines which will then cause adverse effects to the economy.

This is all smoke and mirrors in order to cover up the seriousness of dangerous drugs that are put on the market and not publicized as dangerous and the greedy pharma companies do not care who it affects as long as it makes them money.

https://www.ncbi.nlm.nih.gov/books/NBK50972/

It’s a vicious circle with the government funding the pharmaceutical companies that charge the hospitals atrocious amounts of money for drugs that are not safe to use on humans and for every person that is prescribed the drug, the consultant gets paid the pharmaceutical company gets paid and so does the government. It’s a win-win situation at the expense of the people.

#lemtrada #alemtuzumab #sanofi #sanofigenzymes #sanofigenzymedeaths #multiplesclerosis #ms #neurologycardiff #nhs #neurologyheathhospital

HOSPITAL CLEANSINESS

HOSPITAL CLEANSINESS.

They say that hospitals have to be clean, well ever since my daughter was admitted into hospital 5 days ago, I beg to differ.

As a sufferer of OCD for the last 30 years I am more aware about germs and bacteria than the average person.

Upon arrival and before sitting down I brought with me all my cleaning products needed to disinfect our surroundings. I started cleaning the window sills first off with dettol and anti-bacterial wipes. The nurses on duty commented about the smell and how refreshing it was to inhale and that it was a shame the hospitals do not use Dettol anymore……

When I finally finished cleaning, my wipes were very dirty and brown, so to make a point I left them on the trolley for a senior staff member to see. When the doctor came in I pointed out how dirty I found the room to be and his reply was I’m a Doctor not a Cleaner……

This annoyed me as he continued to say if I had a complaint I should raise it with the Ward Manager or the Cleaning staff. He clearly missed the point as guaranteed if I went to every single ward in the hospital I would find the same standards everywhere.

Considering my daughter is at high risk of contracting diseases you would have thought the area would be super clean.

Furthermore the oxygen mask they gave my daughter was neither wiped before use or after she had finished with it, so imagine someone with vrus could have used it before my daughter. The thought makes me shudder.

The hygenie standards of the UHW are really bad and they wonder why people do not like coming into hospitals.

I also observed the one doctor who had trouble getting my daughter bloods, pushed the syringe up rather than down. I’m no expert but surely that is pushing air into the veins? correct me if i’m wrong? What was I supposed to do or say “excuse me but what the hell are you doing?” im sure that would not have gone down well.

Also the intelligence of some of the staff is something to be desired. I was always taught when you enter the room and you see more than one person you address them all and not ignore the one and just talk to the other. Its called etiquette.

Obviously this Doctor who did not have a name badge was not taught manners and blattently ignored me as if I was invisible. Surely as I am the mother she should have at least acknowledged both my daugher and I and then continued with ther job.

All I can say was we were on ward C4 at eh UHW or (UHS as it is called now in Cardiff Wales) and the Doctor was a female muslim because of her head dress. I did not once see her wash her hands prior to taking my daughters bloods and she did not wear gloves as she was having problems feeling my daughters veins.

I thought that every time a doctor or nurse attends to a patient they have to wash their hands, this has not been the case in Unit C4 or in A&E when my daughter was admitted a few months ago and was ther overnight.

Also what happened to the rule (bare below the elbows) does that just apply to nurses or should all staff that care for patents wellbeing?, as that was clearly not the case with this female doctor on Unit C4 on 19/08//18.

My OCD observations are clearly doing over-time and the hospital should hire me to be the health inspector.

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